Research & Evaluation

Research & Evaluation
Researchers sitting at tables facing a woman speaking with a microphone and powerpoint slide projected behind her

National Research Consortium on MH-IDD

In 2019, the National Center for START Services® established the National Research Consortium (NRC) on Mental Health in Intellectual and Developmental Disabilities (MH-IDD). The NRC is comprised of people with lived experiences (including self-advocates and family members), caregivers, trainees, researchers, policy experts, and clinicians from over 30 organizations across the United States, including several UCEDDs, medical schools, state health departments, and service providers. Today the NRC is operated through the Institute on Disability at the University of New Hampshire. Learn more about the NRC

Grant Funded Research

Current Grant Funded Research

Evaluation of Telehealth Services on Mental Health Outcomes for People With Intellectual and Developmental Disabilities
Funder: Patient Centered Outcomes Research Institute (PCORI)
Awarded: 2021
July 2021 - December 2027
Project Budget: $4,724,504
PI: Joan B. Beasley, PhD, MEd

Educating Medical Trainees on Mental Healthcare and Intellectual and Developmental Disabilities
Funder: WITH Foundation
Approval Date: September 24, 2021
Start Date: November 1, 2021
Award Amount: $50,000
PIs: Joan B. Beasley, PhD, MEd; Andrea Caoili, LCSW

UTAH MHIDD Training Project
Awarded: 2021
10/1/2021 – 9/30/2026
Award Amount: $150,000
PI: UTAH State University


Completed Grant Funded Research

Reconciling the Past & Changing the Future: Engaging young adults with IDD-MH and researchers in Comparative Effectiveness Research

Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (15364 – UF)
9/1/2019 - 8/13/2021
Award Amount: $249,981
PI: Jessica Kramer, PhD; Co-PIs: Joan B. Beasley, PhD & Tawara Goode

Integrated Mental Health Treatment Guidelines for Prescribers in Intellectual and Developmental Disabilities
Funder: WITH Foundation
October 2019
Grant Amount: $50,000
PI: Joan B. Beasley, PhD

Measurement of START Interventions on Emergency Room Use
Funder: Special Hope Foundation
March 2016 - February 2017
Grant Amount: $40,000
Co-PIs: Joan B. Beasley, PhD & Luther Kalb, PhD



Peer-Reviewed Publications


Kramer, J. M., Beasley, J. B., Caoili, A., Kalb, L., Urquilla, M. P., Klein, A. E., Poncelet, J., Black, S., & Tessler, R. C. (2023). Development and content validity of the person experiences interview survey (PEIS): A measure of the mental health services experiences of people with developmental disabilities. Frontiers in Psychiatry, 14.

Kalb, L. G., Kramer, J. M., Goode, T. D., Black, S. J., Klick, S., Caoili, A., Klipsch, S., Klein, A., Urquilla, M. P., & Beasley, J. B. (2023). Evaluation of telemental health services for people with intellectual and developmental disabilities: Protocol for a randomized non-inferiority trial. BMC Health Services Research, 23, 795.

Kramer, J. M., Beasley, J. B., Caoili, A., Goode, T., Guerrero, F., Klein, A., Grosso, E., & Kennelly-Smith, E. (2023). Caregiver experiences with Teleservices for people with intellectual and developmental disabilities and mental health needs during the onset of COVID-19. Journal of Mental Health Research in Intellectual Disabilities, 16(3), 186–204. 

Grosvenor, L. P., Errichetti, C. L., Holingue, C., Beasley, J. B., Kalb, L. G. (2023). Self-report measurement of well-being in autistic adults: Psychometric properties of the Perma Profiler. Autism in Adulthood. Ahead of print.

Caoili, A., Hecker, M., Klick, S., McLaren, J., Beasley, J., & Barnhill, J. (2022). Integrated mental health treatment guidelines for prescribers in intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 1-13. DOI: 

Schwartz, A. E., Caoili, A., Beasley, J. B., Kramer, J. M., & Kalb, L. G. (2022). Clinical applications of the VIA Inventory of Strengths with Individuals with Intellectual/Developmental Disabilities. The Journal of Positive Psychology, 1-10.

Holingue, C., Wise, E., Caoili, A., Klein, A., Kalb, L. G. & Beasley, J. B. (2022). Screening for Dementia among Adults with Intellectual Disability: Outcomes from a Pilot Study. Journal of Mental Health Research in Intellectual Disabilities, 15(1), 20-36. DOI: 10.1080/19315864.2021.1965270.

McLaren, J. L., Lichtenstein, J. D., Metcalfe, J. D., Charlot, L. R., Doerfler, L. A., Drake R. E., & Beasley, J. B. (2021). Psychotropic Use Among Youths With Intellectual and Developmental Disabilities. Psychiatric Services. Advanced online publication

Wise, E., Holingue, C., Klein, A., Caoili, A., Charlot, L., Barnhill, J., Beasley, J. B. (2021). Psychiatric presentations and medication use in older adults with intellectual and developmental disabilities. The American Journal of Geriatric Psychiatry.

Charlot, L. R., Weigle, K. L., & Holingue, C. B. (2021). Mental and physical health conditions of individuals with intellectual and developmental disabilities (IDD) with and without Down syndrome (DS). Journal of Mental Health Research in Intellectual
Advanced online publication

Kalb, L.G., Beasley, J.B., Caoili, A., McLaren, J.L., & Barnhill, J. (2021). Predictors of Mental Health Crises Among Individuals With Intellectual and Developmental Disabilities Enrolled in the START Program. Psychiatric Services, 72(3), 273-280.

Charlot, L. R., Doerfler, L. A., & McLaren, J. L. (2020). Psychotropic medications use and side effects of individuals with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 64, 852– 863.

Holingue, C., Kalb, L. G., Klein, A., & Beasley, J. B. (2020). Experiences with the mental health service system of family caregivers of individuals with an intellectual/developmental disability referred to START. Intellectual and Developmental Disabilities, 58(5), 379–392.

Caoili, A., Barnhill, J., Beasley, J. B. (Eds.). (2020). Integrated Best Practice Mental Health Prescribing Guidelines in Intellectual and Developmental Disabilities. Institute on Disability/UCED, University of New Hampshire.

Kalb, L.G., Beasley, J., Caoili, A., & Klein, A. (2019). Improvement in mental health outcomes and caregiver service experiences associated with the START program. American Journal of Intellectual and Developmental Disabilities, 124(1), 25-34.

Beasley, J., Kalb, L.G., & Klein A. (2018). Improving mental health outcomes for individuals with intellectual disability through the Iowa START (I-START) program. Journal of Mental Health Research in Intellectual Disabilities,  11(4), 287-300.

Kalb, L. G., Beasley, J., Klein, A., Hinton, J., & Charlot, L. (2016). Psychiatric hospitalisation among individuals with intellectual disability referred to the START crisis intervention and prevention program. Journal of Intellectual Disability Research, 60(12), 1153-1164.

Rubin, I.L., Fahs, J.J., Beasley, J.B. (2007). Delivery of Health Care for People With “Dual Diagnosis”: From the Person to the Policy. Mental Health Aspects of Developmental Disabilities, Vol. 10, No. 3.

Book Chapters

Beasley, J. B., Klein, A., & Weigle, K. (2016). Diagnostic, treatment and service considerations to address challenging behavior: A model program for integrated service delivery. In Rubin I.L., Merrick J., Greydanus D.E., Patel D.R. (eds) Health care for people with intellectual and developmental disabilities across the lifespan (pp. 1629-1644). Springer, Cham.

Beasley, J.B. (2005). Crisis Prevention and Management. In I. L. Rubin & A. C. Crocker (Eds.), Medical Care for Children and Adults with Developmental Disabilities (pp. 510-517).  Baltimore, MD: Paul H. Brookes Publishing.

Beasley, J.B. (2002). Trends in coordinated and planned mental health service use by people with dual diagnosis. In J. Jacobson, & R. Fletcher (Eds.) Contemporary Dual Diagnosis: MH/MR Service Models, Volume II: Partial and Supportive Services (pp. 35-51). Kingston, NY: NADD.

Beasley, J.B. & Kroll, J. (2002). The START/Sovner Center Program in Massachusetts. In R. Hanson, N.A. Wieseler, & K.C. Lakin (Eds.) Crisis Prevention and Response in the Community (pp. 95-127) American Association of Mental Retardation., Washington, D.C.

Fletcher, R., Beasley, J., & Jacobson, J., (1998). Support Service Systems for people with Dual Diagnosis in the USA. In N. Bouras (Ed.) Psychiatric and Behavioral Disorders in Developmental Disabilities and Mental Retardation (pp. 373-390).