National Research Consortium on MHIDD
In 2019, the National Center for START ServicesTM established the National Research Consortium on Mental Health in Intellectual and Developmental Disabilities (NRC-MHIDD). The goal of this collaboration is to improve the mental health and wellbeing of individuals with IDD, their families and communities. The National Research Consortium on MHIDD is comprised of people with lived experiences (including self-advocates and family members), caregivers, trainees, researchers, policy experts, and clinicians from over 30 organizations across the US including several UCEDDs, medical schools, state health departments, and service providers. Learn more about the NRC
Grant Funded Research
Current Grant Funded Research
Evaluation of Telehealth Services on Mental Health Outcomes for People With Intellectual and Developmental Disabilities
Funder: Patient Centered Outcomes Research Institute (PCORI)
July 2021 - December 2027
Project Budget: $4,724,504
PI: Joan B. Beasley, PhD, MEd
Educating Medical Trainees on Mental Healthcare and Intellectual and Developmental Disabilities
Funder: WITH Foundation
Approval Date: September 24, 2021
Start Date: November 1, 2021
Award Amount: $50,000
PIs: Joan B. Beasley, PhD, MEd; Andrea Caoili, LCSW
UTAH MHIDD Training Project
10/1/2021 – 9/30/2026
Award Amount: $150,000
PI: UTAH State University
Completed Grant Funded Research
Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (15364 – UF)
9/1/2019 - 8/13/2021
Award Amount: $249,981
PI: Jessica Kramer, PhD; Co-PIs: Joan B. Beasley, PhD & Tawara Goode
Integrated Mental Health Treatment Guidelines for Prescribers in Intellectual and Developmental Disabilities
Funder: WITH Foundation
Grant Amount: $50,000
PI: Joan B. Beasley, PhD
Measurement of START Interventions on Emergency Room Use
Funder: Special Hope Foundation
March 2016 - February 2017
Grant Amount: $40,000
Co-PIs: Joan B. Beasley, PhD & Luther Kalb, PhD
Kalb, L. G., Kramer, J. M., Goode, T. D., Black, S. J., Klick, S., Caoili, A., Klipsch, S., Klein, A., Urquilla, M. P., & Beasley, J. B. (2023). Evaluation of telemental health services for people with intellectual and developmental disabilities: Protocol for a randomized non-inferiority trial. BMC Health Services Research, 23, 795. https://doi.org/10.1186/s12913-023-09663-6
Kramer, J. M., Beasley, J. B., Caoili, A., Goode, T., Guerrero, F., Klein, A., Grosso, E., & Kennelly-Smith, E. (2023). Caregiver experiences with Teleservices for people with intellectual and developmental disabilities and mental health needs during the onset of COVID-19. Journal of Mental Health Research in Intellectual Disabilities, 16(3), 186–204. https://doi.org/10.1080/19315864.2023.2214096
Grosvenor, L. P., Errichetti, C. L., Holingue, C., Beasley, J. B., Kalb, L. G. (2023). Self-report measurement of well-being in autistic adults: Psychometric properties of the Perma Profiler. Autism in Adulthood. Ahead of print. http://doi.org/10.1089/aut.2022.0049
Caoili, A., Hecker, M., Klick, S., McLaren, J., Beasley, J., & Barnhill, J. (2022). Integrated mental health treatment guidelines for prescribers in intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 1-13. DOI: https://onlinelibrary.wiley.com/doi/10.1111/jppi.12447
Schwartz, A. E., Caoili, A., Beasley, J. B., Kramer, J. M., & Kalb, L. G. (2022). Clinical applications of the VIA Inventory of Strengths with Individuals with Intellectual/Developmental Disabilities. The Journal of Positive Psychology, 1-10.
Holingue, C., Wise, E., Caoili, A., Klein, A., Kalb, L. G. & Beasley, J. B. (2022). Screening for Dementia among Adults with Intellectual Disability: Outcomes from a Pilot Study. Journal of Mental Health Research in Intellectual Disabilities, 15(1), 20-36. DOI: 10.1080/19315864.2021.1965270.
McLaren, J. L., Lichtenstein, J. D., Metcalfe, J. D., Charlot, L. R., Doerfler, L. A., Drake R. E., & Beasley, J. B. (2021). Psychotropic Use Among Youths With Intellectual and Developmental Disabilities. Psychiatric Services. Advanced online publication https://doi.org/10.1176/appi.ps.201900465.
Wise, E., Holingue, C., Klein, A., Caoili, A., Charlot, L., Barnhill, J., Beasley, J. B. (2021). Psychiatric presentations and medication use in older adults with intellectual and developmental disabilities. The American Journal of Geriatric Psychiatry. https://doi.org/10.1016/j.jagp.2021.05.022.
Charlot, L. R., Weigle, K. L., & Holingue, C. B. (2021). Mental and physical health conditions of individuals with intellectual and developmental disabilities (IDD) with and without Down syndrome (DS). Journal of Mental Health Research in Intellectual
Disabilities. Advanced online publication https://doi.org/10.1080/19315864.2020.1864687.
Kalb, L.G., Beasley, J.B., Caoili, A., McLaren, J.L., & Barnhill, J. (2021). Predictors of Mental Health Crises Among Individuals With Intellectual and Developmental Disabilities Enrolled in the START Program. Psychiatric Services, 72(3), 273-280. https://doi.org/10.1176/appi.ps.202000301
Charlot, L. R., Doerfler, L. A., & McLaren, J. L. (2020). Psychotropic medications use and side effects of individuals with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 64, 852– 863. https://doi.org/10.1111/jir.12777.
Holingue, C., Kalb, L. G., Klein, A., & Beasley, J. B. (2020). Experiences with the mental health service system of family caregivers of individuals with an intellectual/developmental disability referred to START. Intellectual and Developmental Disabilities, 58(5), 379–392. https://doi.org/10.1352/1934-9556-58.5.379
Caoili, A., Barnhill, J., Beasley, J. B. (Eds.). (2020). Integrated Best Practice Mental Health Prescribing Guidelines in Intellectual and Developmental Disabilities. Institute on Disability/UCED, University of New Hampshire.
Kalb, L.G., Beasley, J., Caoili, A., & Klein, A. (2019). Improvement in mental health outcomes and caregiver service experiences associated with the START program. American Journal of Intellectual and Developmental Disabilities, 124(1), 25-34. https://doi.org/10.1352/1944-7558-124.1.25
Beasley, J., Kalb, L.G., & Klein A. (2018). Improving mental health outcomes for individuals with intellectual disability through the Iowa START (I-START) program. Journal of Mental Health Research in Intellectual Disabilities, 11(4), 287-300. https://doi.org/10.1080/19315864.2018.1504362
Kalb, L. G., Beasley, J., Klein, A., Hinton, J., & Charlot, L. (2016). Psychiatric hospitalisation among individuals with intellectual disability referred to the START crisis intervention and prevention program. Journal of Intellectual Disability Research, 60(12), 1153-1164. https://doi.org/10.1111/jir.12330
Rubin, I.L., Fahs, J.J., Beasley, J.B. (2007). Delivery of Health Care for People With “Dual Diagnosis”: From the Person to the Policy. Mental Health Aspects of Developmental Disabilities, Vol. 10, No. 3.
Beasley, J. B., Klein, A., & Weigle, K. (2016). Diagnostic, treatment and service considerations to address challenging behavior: A model program for integrated service delivery. In Rubin I.L., Merrick J., Greydanus D.E., Patel D.R. (eds) Health care for people with intellectual and developmental disabilities across the lifespan (pp. 1629-1644). Springer, Cham. https://doi.org/10.1007/978-3-319-18096-0_129
Beasley, J.B. (2005). Crisis Prevention and Management. In I. L. Rubin & A. C. Crocker (Eds.), Medical Care for Children and Adults with Developmental Disabilities (pp. 510-517). Baltimore, MD: Paul H. Brookes Publishing.
Beasley, J.B. (2002). Trends in coordinated and planned mental health service use by people with dual diagnosis. In J. Jacobson, & R. Fletcher (Eds.) Contemporary Dual Diagnosis: MH/MR Service Models, Volume II: Partial and Supportive Services (pp. 35-51). Kingston, NY: NADD.
Beasley, J.B. & Kroll, J. (2002). The START/Sovner Center Program in Massachusetts. In R. Hanson, N.A. Wieseler, & K.C. Lakin (Eds.) Crisis Prevention and Response in the Community (pp. 95-127) American Association of Mental Retardation., Washington, D.C.
Fletcher, R., Beasley, J., & Jacobson, J., (1998). Support Service Systems for people with Dual Diagnosis in the USA. In N. Bouras (Ed.) Psychiatric and Behavioral Disorders in Developmental Disabilities and Mental Retardation (pp. 373-390).