How people with IDD-MH and families can get involved in research
What is research?
Advisory board member ,Max Barrows, defines research.
There are two ways to get involved in research:
Volunteer to be in a research study
Jessica Kramer, a member of our leadership team, provides information about research volunteers.
These are words people use to describe research volunteers: Research participant, “human subject”, key informant, respondent
Be part of the team that designs and carries out a research study
A member of our leadership team, Destiny Watkins, talks about her experience as a member of a research team.
Micah Peace, a member of our leadership team, explains that researchers look just like you.
Who can be a member of a research team?
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People who are experts on a specific topic.
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What makes you an expert?
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Lived experience of IDD-MH
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Experiences with services and supports
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Prior research experience
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Other skills (for example, training as an advocate)
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What would you do as a member of a research team?
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Think of research questions that are important to your everyday life.
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Make sure the steps of the research study (methods) are fair and ethical.
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Make sure the research is accessible.
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Share things about yourself and your life with the research team.
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Explain the research study to other people.
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Ask people questions (for example, give a survey or hold an interview).
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Help to understand the data.
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Share what you learn from the research with other people.
